Panel Discussion: Ownership of data: what and how to share?
March 7, 2019
Concern is often expressed about the possibility of reidentification of participants in dementia genetic studies. How big of a problem is that in reality? How does patient consent play into DNA sequences being monetized? What would an ideal publicly available data set look like? Find out what leading dementia researchers think about the trends in the field and what are their recommendations for the future. Panelists in the session: -Prof. Nick Fox, UKDRI, University College London -Dr. Valentia Escott-Price, UKDRI, University of Cardiff -Dr. Sobia Raza, PHG Foundation Session moderated by: Dr. Gabrielle Strobel, ALZ Forum For other videos and dementia research-related resources, visit
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